Has PKU been causing you or a loved one to feel foggy, confused, or forgetful? Back to Care is here to help. We can help you find the resources and support to help you or a loved one get back on track with PKU treatment.

Find a clinic near you, see a list of helpful PKU resources, or talk with an actual person about treatment options. Whatever you need, let Back to Care help you.

Connect With Someone Who Can Help.

It's never too late to get back to care. Call 888-347-3117 between 9:00 AM and 5:00 PM ET to talk with a Back to Care team member. You can also sign up below to have a Back to Care team member contact you.

Our Back to Care team members can connect you with resources to help you or your loved one get back on track with PKU treatment.

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Find a Clinic Near You

It can sometimes be difficult getting your PKU treatment back on track by yourself. A specialized clinic team can give you the support you need to take control of your PKU.

Find a metabolic clinic in your area that can provide the latest information on updated PKU treatment guidelines, new formula and low-protein diet options, and prescription medication.

 

Helpful resources

BioMarin RareConnections is committed to the PKU community. Your experienced BioMarin RareConnections team will help guide you around barriers to treatment, financial hurdles, and life changes that may come between you and the care you need.

http://www.biomarin.com/patients/biomarin-rareconnections

877-695-8826

Cambrooke Therapeutics is the leading innovator in complete dietary therapy for PKU. Founded by two PKU parents, Cambrooke offers the first PKU formula based on an intact natural peptide. Cambrooke produces the most extensive range of low protein foods and formulas for the complete PKU diet.

http://www.cambrooke.com

866-456-9776

Nutricia is a global health company that leads the development and use of advanced medical nutrition for specialized care. Nutricia is dedicated to providing quality formulas and medical foods for the treatment of rare genetic and metabolic disorders.

http://www.medicalfood.com

United States: 800-605-0410

Canada: 877-636-2283

Vitaflo® has developed a new generation of innovative medical foods for conditions such as PKU. These foods not only meet nutritional needs, but also appeal to the individuals who take them on a daily basis.

https://www.nestlehealthscience.us/vitaflo-usa

Order Line: 888-VITAFLO (848-2356)

Direct Line: 571-447-5200

Continue on to the rest of the NPKUA website for additional resources and information about PKU. The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education, and advocacy, while ultimately seeking a cure.